Head of Community Marketing

Job description

Define and own the community marketing strategy across virtual channels including social, online groups, content, and email

Define and own the community marketing strategy across in-person channels including events, conferences, meetups, and fundraisers

Develop original campaign concepts to activate and grow patient and caregiver communities

Build and own relationships with patient advocacy groups and foundations across hundreds of rare diseases

Strengthen existing partnerships and cultivate new patient advocacy group and foundation relationships

Test and iterate referral and email outreach, partnerships and sponsorships, events, participant compensation, and paid media

Track the impact of community efforts on patient acquisition and CAC

Adjust strategy based on performance data

Build scalable, repeatable playbooks for community-driven growth

Represent Probably Genetic at conferences, fundraisers, and community events

Travel regularly for events and partner meetings

Help Probably Genetic grow an engaged community of patients, families, and caregivers

Requirements

5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement

Track record of building or significantly growing a community with active participation, member-generated content, referrals, and brand-organized activity

Creative instincts for community activation from concept to execution

Fluency in virtual and in-person community building

Comfort using data to guide decisions and identify growth, engagement, and CAC drivers

Genuine empathy for engaging a sensitive, high-stakes population

Strong written and verbal communication skills

Willingness to travel regularly for events and partner meetings

Rare disease landscape familiarity or existing rare disease community relationships are not required

Good person who is empathetic and patient-focused

Motivation to have a lasting, positive impact on humanity

Comfort in a fast-paced, ambiguous environment with rapid change

Action-oriented approach and excitement to build a company from the ground up

Must be legally authorized to work in the United States

Must be willing and able to work in-office Tuesday-Thursday each week in San Francisco

Must be willing and able to relocate to the Bay Area without relocation assistance if not currently based there

Core Competencies

Demonstrates expertise in community marketing strategy across both virtual and in-person channels, with a strong focus on building relationships and engaging patient and caregiver communities. Utilizes data-driven decision-making to optimize community growth and engagement.

Highest-signal resume keywords

Community Marketing Strategy

Data-Driven Decision Making

Relationship Building

Campaign Development

Event Representation

Hard Skills

Community-Led Growth

Campaign Concept Development

Patient Acquisition Tracking

Referral Outreach

Email Marketing

Soft Skills

Empathy

Strong Communication Skills

Action-Oriented Approach

Creativity

Adaptability

Industry Keywords

Patient Advocacy Groups

Rare Diseases

Community Engagement

Member-Generated Content

Fundraisers

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Worksite address

san francisco, CA, 94199, US

Who can apply

Review the original listing for work authorization, qualifications and employer requirements.