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Initial Therapeutics, Inc.

Senior Director, Patient Advocacy

village of sleepy hollow, NY

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Job description

Senior Director, Patient Advocacy

Role Summary: The Senior Director, Patient Advocacy leads Regeneron's disease area enterprise-wide advocacy strategy and operating model, integrating the patient voice across the continuum of discovery, development, and commercialization. This leader exercises independent judgment in ambiguous environments, influences executive decision-making, and builds scalable processes that elevate patient impact, operational efficiency, and company reputation. The role serves as a trusted advisor to senior leadership and a visible ambassador to advocacy and professional organizations.

Location and Work Model

This role is based in Sleep Hollow, NY, 4 days/week.

Impact and Scope

Develops the overarching patient advocacy strategy across multiple therapeutic areas, with enterprise visibility and executive engagement

Establishes standard methodologies and governance for engagement with advocacy and professional societies

Advises cross-functional contributors in Medical, Commercial, Market Access, Policy, and Clinical Development with view to multi-year roadmap on advocacy strategy

Accountable for measurable improvements in disease awareness, time to diagnosis, clinical trial awareness, access, and patient experience

Operates at both strategic and operational level; drives outcomes through cross-functional leadership

Roles and Responsibilities

Strategy and Leadership

Define and evolve the disease area patient advocacy strategy, translating corporate objectives into a prioritized, outcome-based portfolio

Standardize engagement frameworks, decision rights, and operating mechanisms that scale across therapeutic areas and regions

Anticipate external trends and policy shifts as well as shifting company priorities to frame and be comfortable and strategic about recommending tactical choices and trade-offs with clear implications for patients and the business

Help establish governance and operating mechanisms that support alignment, speed and accountability across department

Advocacy Strategy and Execution

Create and maintain therapeutic area strategies and operating plans, including educational programs, disease awareness, advisory boards, patient speaker engagement, clinical trial awareness, and coordination on relevant policy initiatives

Support development and deployment of advocacy campaigns; ensure external partner plans align to Regeneron's goals and compliance standards

Define and report outcome-based KPIs; implement dashboards to monitor reach, quality, and ROI of advocacy efforts

Executive Engagement and Influence

Serve as a trusted advisor to senior executives; deliver board-ready materials that articulate patient impact, risks, and investment options

Lead executive forums and steering committees to drive aligned decisions across competing priorities

Relationship Management

Lead relationship development with key patient advocacy and professional societies to build durable, mission-aligned partnerships

Ensure Regeneron's leadership position is evident through presence at priority events; synthesize and disseminate insights to internal stakeholders

Cross-Functional Collaboration and Alignment

Build strong, collaborative relationships with Medical, Commercial/Brand, Market Access, Government Affairs, Health Policy, Clinical Development, and Legal/Compliance

Drive cross-functional alignment (including at top senior leadership levels, e.g. VP level) and execution of advocacy initiatives; co-create plans with Alliance partners where applicable

Contribute to departmental strategy, annual planning, budgeting, and digital portal development

Patient Voice and Insights

Systematically capture and translate patient insights to inform clinical trial design, evidence generation, disease education, patient services, and access strategies

Champion a patient-centric mindset and embed patient perspectives in enterprise decisions and roadmaps

Financial and Business Acumen

Own budgeting and optimize for impact

Grants and Governance

Strategically fund programs that advance patient engagement and disease education aligned to therapeutic priorities

Oversee transparent, compliant grant review processes; manage budgets and financial stewardship effectively and in a timely manner

Qualifications Required

Bachelors degree and 12+ years of industry experience, including 10-15+ years in Patient Advocacy leading multi-stakeholder programs

Demonstrated enterprise thinking with a track record of cross-functional visibility, influence and company-wide impact

Executive presence with superior communication skills; able to craft concise, data-driven narratives and board-ready materials

Proven operational rigor: building repeatable processes, governance, and metrics with measurable outcomes, experience collaborating with Medical, Commercial, Market Access, and Policy partners; strong familiarity with compliance in advocacy contexts

Preferred

Experience in rare diseases, oncology, hematology, ophthalmology, immunology, and/or cardio-metabolic

Background operating in complex, matrixed, or global environments; alliance management experience

Reporting and Collaboration

Reporting Line

Reports to Executive Director, Patient Advocacy; may manage direct report(s)

Key Internal Partnerships

Up to SVPs across Medical, Commercial, Market Access, Government Affairs, and Health Policy embedded in the business

Salary

$216,100.00 - $360,200.00 annually

Equal Opportunity Employer Statement

Regeneron is an equal opportunity employer and all qualified applicants will receive consideration for employment without regard to race, color, religion or belief (or lack thereof), sex, sexual orientation, gender identity or expression, gender reassignment, marital or civil partnership status, civil status, pregnancy or parental status, age, disability, nationality, citizenship status, ethnic or national origin, membership of the Traveler community, familial status, genetic information, military or veteran status, or any other characteristic protected under applicable law. Where required, we will provide reasonable accommodation to applicants with known disabilities or chronic illnesses during the recruitment process, unless such accommodation would impose undue hardship.

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